How should you respond to the parents of a dying child who fear forgetting their child?

The ideal response to the parents of a dying child who fear forgetting their child is to offer practical assistance that acknowledges their emotional struggle while providing a pathway for creating lasting memories. Suggesting the involvement of a child life team indicates a compassionate approach focused on memory-making activities, which can help the parents actively engage in preserving their child's memory in a meaningful and supportive way.

This response aligns with palliative care principles, recognizing the importance of psychological support and memory creation for grieving families. Such activities can involve creating mementos, engaging in storytelling, or participating in rituals that honor the child's life. It emphasizes proactive involvement in their grief process, making them feel more empowered and connected to their child's legacy.

While acknowledging that memories fade over time is a truth many people face, simply saying it is normal can come off as dismissive of their feelings. Encouraging scrapbook creation or suggesting that time will enhance their memories, though well-intentioned, may not directly address their immediate emotional needs or fears of forgetting. By focusing on active remembrance through guided support, the chosen response better addresses their concerns and facilitates the healing process.